Thanks everyone, Sheryl I've been thinking about Chloe a lot with all this, she's going to be Tilly's inspiration
I really hope Tills responds as well as she did to that drug combination, thank you for that photo 
It is better to know though definitely, it's weird, getting a diagnosis even if it's not fabulous news is still better than not knowing for sure.
I think that when you know what you are fighting things become a little easier. You can plan and make informed choices instead of grasping at anything and everything.
I am sure Chloe would have loved nothing better than to be an inspiration! Albeit a barrel shaped one

Cannot really say why Chloe did so well. I know that I loved her to within an inch of her life every day (much to her disgust) and that I treated her as if every day was her last. That was a lot of days by the way

If I can help, please just shout.
Are they giving some sort of antacid whilst the steroid dose is so high? Sorry, random question I know!